HORIZONS includes a range of outcome measures informed by the conceptual framework underpinning our programme of research.
Quality of Life in Adult Cancer Survivors (QLACS) is the primary outcome measure across cancer types and will be included at each time-point.
Areas under investigation will include:
- Pre-existing factors: including age, gender, social circumstances, co-morbidities.
- Cancer diagnosis and treatment (data collected from medical details).
- Consequences of cancer diagnosis and treatment: including physical symptoms, psychological problems, social implications such as impact on social relationships and networks, practical implications (e.g. work-related problems, everyday chores, travel); perceived impact on everyday life including financial impact, and how this is experienced as burdensome to individuals.
- Self-management of consequences and aftercare: self-management activities.
- Personal factors: Individual characteristics such as resiliance and confidence to self-manage (self efficacy); perceived burden of treatment; perceived support and resources that individuals have in order to manage consequences for themselves.
- Environmental factors: access to / utilisation of health and social care and other forms of support, including social support through family, friends, community, healthcare, social care, third sector and social networks
- Health and well-being: quality of life, health status, personal well-being.
- Life events